After two editions in virtual format due to the covid-19 pandemic, the National Institute of Spinal Muscular Atrophy (INAME) is again carrying out the INAME Congress on Spinal Muscular Atrophy face-to-face, consolidating itself as the biggest event on AME in Latin America.
The event will take place at Novotel Center Norte in São Paulo (SP), between March 3rd and 5th, 2023. The congress will have eight simultaneous auditoriums, which will host three events: a scientific meeting (aimed exclusively at health professionals), a meeting for patients and their families, and a children’s program.
Among the 42 confirmed national and international speakers, the neurologist, professor at the Faculty of Medicine of the University of São Paulo (FMUSP) and member of the scientific committee of INAME, Edmar Zanoteli, reinforces that one of the outstanding themes is the so-called SMA at the beginning late.
In the area of respiratory care, the event will feature the participation of authors of the most effective non-invasive ventilation protocols and dozens of papers published in renowned international journals, professors Dr. John Bach from the United States and Dr. Miguel Gonçalves, from Portugal.
In the medical area, another confirmed presence is Professor Dr. Eduardo Tizzano, who is dedicated to diagnosis and research in SMA at the Hospital de la Santa Cruz y San Pablo in Barcelona, a reference center for the diagnosis of SMA throughout Europe.
One of the novelties of the 2023 edition is the Poster Session, in which the selected works will be presented during the event. Work classified between 1st and 40th will receive incentives.
Three pre-congress courses will also be offered, focused on the areas of respiratory care and motor assessment in AME – Chop Intend and Hammersmith scales. The latter will be taught by the Italian physiotherapist Elena Mazzone, one of the great world references in her field.
Registration for the 2023 INAME Congress is now open. More information is available on the event’s website, by e-mail [email protected] and telephone (11) 94488-8046.
About spinal muscular atrophy
A spinal muscular atrophy it is one of more than 8,000 known rare diseases in the world and affects approximately 7 to 10 babies in every 100,000 live births. It is characterized by progressive weakness, which compromises functions such as breathing, eating and walking.
In Brazil, there is still no epidemiological study that indicates the exact number of individuals affected by the disease. The disease is clinically classified into types (ranging from type 0 to 4) based on the onset of signs and symptoms and the motor milestones achieved by patients.
BOW
The National Institute of Spinal Muscular Atrophy (BOW) is a non-profit association of patients and families with Spinal Muscular Atrophy (AME), which works to seek adequate treatment and care for all patients with the disease in Brazil.
It also works to support the needs of families, from diagnosis to the daily routine of multidisciplinary action. INAME’s work is based on three pillars: assistance, training and advocacy.
After two editions in virtual format due to the covid-19 pandemic, the National Institute of Spinal Muscular Atrophy (INAME) is again carrying out the INAME Congress on Spinal Muscular Atrophy face-to-face, consolidating itself as the biggest event on AME in Latin America.
The event will take place at Novotel Center Norte in São Paulo (SP), between March 3rd and 5th, 2023. The congress will have eight simultaneous auditoriums, which will host three events: a scientific meeting (aimed exclusively at health professionals), a meeting for patients and their families, and a children’s program.
Among the 42 confirmed national and international speakers, the neurologist, professor at the Faculty of Medicine of the University of São Paulo (FMUSP) and member of the scientific committee of INAME, Edmar Zanoteli, reinforces that one of the outstanding themes is the so-called SMA at the beginning late.
In the area of respiratory care, the event will feature the participation of authors of the most effective non-invasive ventilation protocols and dozens of papers published in renowned international journals, professors Dr. John Bach from the United States and Dr. Miguel Gonçalves, from Portugal.
In the medical area, another confirmed presence is Professor Dr. Eduardo Tizzano, who is dedicated to diagnosis and research in SMA at the Hospital de la Santa Cruz y San Pablo in Barcelona, a reference center for the diagnosis of SMA throughout Europe.
One of the novelties of the 2023 edition is the Poster Session, in which the selected works will be presented during the event. Work classified between 1st and 40th will receive incentives.
Three pre-congress courses will also be offered, focused on the areas of respiratory care and motor assessment in AME – Chop Intend and Hammersmith scales. The latter will be taught by the Italian physiotherapist Elena Mazzone, one of the great world references in her field.
Registration for the 2023 INAME Congress is now open. More information is available on the event’s website, by e-mail [email protected] and telephone (11) 94488-8046.
About spinal muscular atrophy
A spinal muscular atrophy it is one of more than 8,000 known rare diseases in the world and affects approximately 7 to 10 babies in every 100,000 live births. It is characterized by progressive weakness, which compromises functions such as breathing, eating and walking.
In Brazil, there is still no epidemiological study that indicates the exact number of individuals affected by the disease. The disease is clinically classified into types (ranging from type 0 to 4) based on the onset of signs and symptoms and the motor milestones achieved by patients.
BOW
The National Institute of Spinal Muscular Atrophy (BOW) is a non-profit association of patients and families with Spinal Muscular Atrophy (AME), which works to seek adequate treatment and care for all patients with the disease in Brazil.
It also works to support the needs of families, from diagnosis to the daily routine of multidisciplinary action. INAME’s work is based on three pillars: assistance, training and advocacy.
